Wednesday, July 05, 2006

Endocrinologist Appointment


Edgars doctor's visit went very well. They weighed him (52 lbs) and measured him (51 inches). Even for his height he is underweight and for his age he is VERY small(In the 3rd percentile). He cried when he saw the chart. It broke our hearts. He was hoping so much that they would tell him that he was closer to where he should be. They drew his blood and are going to run some tests and will get back with us about those. The doctor said based on his age, weight, height, etc he should be taking 1.1 mg of the Genotropin and he is only taking .8 so we will begin increasing that tonight. We also found out during the visit that while he is at the boarding school they are not refrigerating the medicine. The doctor said that this can make the medicine much less effective, if at all. So all these daily injections could have been no good because the medicine was ruined by not being refrigerated! It is so frustrating that the people at his school do not see the importance of maintaining this medicine. Hopefully Helen can talk to them about the importance of the medicine being refrigerated and that they have to make sure he takes it EVERY day! I will update the blog when we hear back from the doctor in regards to his tests.

I promised Edgars that I would take him for a surprise when we were done at the doctor if he was VERY brave. So when we left we went to Walmart to let him pick a small toy. He has gotten in the habit of saying "I Need" about everything. I have been trying to teach him the difference between "Want" and "Need". When we were leaving Walmart Gene pointed to something and said "I need this". Edgars hollered over to him "Papa Gene...want NOT need!" hahaha I told him at least I have taught him something! :-) It gave us a good laugh!



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